Anthony and Katia Conte founded the Daniela Conte Foundation in 2020 to raise awareness, fund research to develop less toxic, more targeted treatments for childhood cancers with a specific focus on Embryonal Rhabdomyosarcoma (ERMS), and financially assist pediatric patients and their families going through treatment. Daniela passed away from Embryonal Rhabdomyosarcoma on March 2, 2020. It is her legacy that we proudly carry on today.
We are a committed partner of Cold Spring Harbor Laboratory and the laboratory is the beneficiary of our fundraising efforts. The Daniela Conte Foundation is funding all phases of research, from clinical trials to translational and bench studies. These projects encompass numerous types of sarcomas. It is our hope that scientific advancements result in pediatric patients accessing better treatment options and having improved outcomes. Sarcoma is a cancer of the connective tissue, such as bones, muscles, nerves, fat, cartilage, tendons and blood vessels. Sarcomas comprise about 15-20% of pediatric cancers.
The overall relative 5-year survival rate of children with sarcomas is around 50%, a statistic that has not changed in almost five decades.